Thursday, April 12, 2012

Honouring Aaron

H
A
V
E
S
E
X
!

"Have sex!"  That was my good friend Aaron's favourite saying.  Whether as greeting or farewell, Aaron would smile broadly and say this phrase, his credo, if you will.  He would even say it loudly on the street as he wheeled passed by bystanders. And, in dull, serious meetings, Aaron took particular joy in shaking things up by saying "Have sex!" or laughing (heh heh heh) at any comment he heard that had even the slightest double entendre.

Aaron was like me in that we both communicated by several different means:  low-tech communication boards with letters, words, and phrases on them; gestures; facial expressions; eye gaze; and, verbalizing.

Aaron would verbalize "Have sex!" with great glee and abandon. His closest friends understood what he was saying, of course, but strangers had trouble with his dialect - and, honestly, this was part of the joke to Aaron!  He could say any risque thing he wanted, and most strangers would smile and nod patronizingly at him. Either that, or he would be completely ignored.

It is not my intent to be overly analytical here and now, but perhaps one of the reasons why Aaron said and did such outrageous things was so that he could be recognized and respected as a human being with thoughts, feelings, and desires like anyone else.  His quirky, in-your-face attitude was, in my humble opinion, a way in which he could deal with a society that had turned its back on him in so many ways.

As implied here, Aaron loved sex with a passion! He thought people should just chill out, forget their troubles and hang-ups, and just have sex. Aaron thought most of the world's problems could  be solved if  we took more time to pleasure each other.  Not a bad theory, really.

March 30, 2012, marked the second year of Aaron's death from cancer.  To honour the memory of the man we loved, a bunch of my friends and I went and got tattoos and then had drinks at Aaron's favourite bar, the Black Bull.

We all decided to get words from Aaron's communication board tattooed on ourselves, words that had special meaning for each of us.

Aaron's communication board #1

Aaron's communication board #2
Aaron's communication board #3

try
machine

life
A blank square, symbolizing all Aaron had said in his lifetime and what he might have said.



And I, of course, got -

have sex

Have sex, Aaron... wherever you are.  We love you!

Friday, March 16, 2012

Abolish Austerity!

Photo by John Bonnar, from rabble.ca

Photo by John Bonnar, from rabble.ca



Today, with many of my peers, I took part in a demonstration to protest the cuts in the upcoming 2012 provincial budget.  Financial Consultant, Don Drummond has even come out and bluntly said that if all these cuts go through as planned, Ontario will have to face an age of austerity for many years.

As usual, I wrote a speech to voice my opinion. Here it is:



Queen’s Park is coming out with the 2012 Budget very soon. We know this will be an austerity focused one. Once again, low income communities and marginalized people will be hit the hardest.  Drummond has proposed cutbacks that would make the years of Mike Harris’ “Common Sense Revolution” seem like child’s play by comparison.  Harris cut 4.6% from government programs.  Drummond wants to cut a whopping 16.4% across the board.

Pocketing $1,500 a day to consult on how to make people’s lives a little more difficult, a little more demeaning, Drummond has proposed that there be cuts to healthcare, education, and social programs.  These cuts mean loss of vital services and loss of many, many jobs. They also mean that if people get laid off and can’t find jobs, which in this economy is entirely probable, they will have to apply to receive EI or OW.  But wait! According to Drummond’s plan, it will be made more difficult for people to get OW and ODSP.  He also states that these programs shouldn’t be run provincially but run federally.

I keep hearing the word “austerity” - and I bloody well hate it!  I want to abolish the word “austerity” and those who threaten us with it!  We already barely survive on what little we have each month, how can our government even think of making more cuts? They who give big corporations and banks tax breaks, who buy obsolete fighter jets, and pay consultants $1,500 a day want to cut back on the amount of money I have available for groceries and bills!

I got kind of depressed writing this speech and thinking about how many incredibly similar speeches I have written and delivered over the past 7 years. We keep fighting the cuts to services but the cuts keep coming, if not to the same services then to different ones. Either way, governments are unravelling the fabric of our society.

 In spite of all this, I remain steadfastly hopeful. Being here with all of you today makes me feel strong and determined to keep fighting, and to continue to do so until my very last breath! We must all continue to fight together to ensure that those unfeeling, greedy bastards don’t keep cutting services so there’s nothing left for us or for future generations!

Abolish Austerity!

Thank you.

Monday, March 5, 2012

Memories, Reflections, and a Cat's Birthday

Me at 12 years of age
Sharing a laugh with my brother Bruce
Tribute to Dandylion


Memories.  The mere word makes me smile and remember the time my mother took me to see "The Way We Were" when I was in my early teens.  There was that great scene where Barbara Streisand gently, and with great regret, brushes a strand of hair away from Robert Redford's eyes.  ".... misty coloured memories of the way we were." - yup, I can still hear Barbara belting it out with all the passion she could muster!  I remember thinking, How could she leave such a cute, charming guy?  I'd never do that!  I know better now, though; nothing is just black or white. You gotta do what you gotta do, no matter how sexy the guy is!

About a couple of weeks ago, I was watching Coronation Street and I  was quite surprised to see Robert  Vaughn doing a guest appearance as one of the newer characters. He used to be on "The Man From U.N.C.L.E. about 40 odd years ago. It wasn't one of my all time favorite TV shows, but I liked it and I have fond memories of watching it every Sunday evening, when my whole family would go downstairs and have dinner in the rec-room.

It was family bonding time as we ate, chatted, played with our dog Tippy, and watched shows like "Star Trek", "Get Smart", "Lost in Space", and "Bonanza".  (I never told anybody this until I was an adult, but as a  very young child I was absolutely terrified of tumbleweeds!  If a Western was on and a tumbleweed skittered across the screen, I would have to avert my eyes and hold my breath until it had passed.)

It's interesting what scares you, inspires you, shapes the person you become.  As a toddler, my brother had a doll, which he would always carry around with him, and he would imitate our mother as she sat breastfeeding me by putting the mouth of the doll to his own nipple.  As an adult, Bruce is an undeniable wonderful and devoted father to his two kids.  Because I admired Bruce as a very small child and wanted to emulate everything he did, I asked for and received a toy gun and holster set one Christmas.  I didn't become a gunslinger, of course, but that unique gift from years past instilled in me the courage to be able to express my individuality freely, despite societal pressures and labels, and to have enough guts to fight for what I believe in.

Memories.  They can result in such joy or terrible pain - sometimes, weirdly, both at the same time!  Valentine's Day has come and gone, and it gave me smiles, tears, and sweet memories of romantic times with Rob long past.

Back in 1987, both Rob and I had pretty much given  up on finding that special someone - until December of that year, of course, when we started chatting online on a bulletin-board system called  F.A.N. (Free Access Network) and fell hopelessly in love!

In hindsight, I'm sure Rob and I must have appeared sickeningly sweet in our absolute devotion to each other during that first blush of love.  I remember that Rob bought me two mini teddy bears named Rhett and Scarlett (he knew I was a big fan of "Gone With the Wind"), and a box of truffles.  I gave Rob a novelty Valentine's Day "devil" which held a large sign that had "I Love You!" written on it.  We kissed and hugged and cuddled and fondled, and we both repeatedly told each other how happy we were to have finally found someone special enough with whom to spend Valentine's Day.

This past February 11th would have been Dandylion's 22nd birthday.  The date fell on a Saturday this year and I had planned on celebrating his life and its influence on my business by going to St Lawrence Market and giving away either a magnet or key chain (with his portrait emblazoned on them) with every "Dandy Variety Pack" purchased.  Unfortunately, that day there had been a hell of a snow storm and none of the sidewalks had been cleared, so I was snowed in!  I'm still doing the promotion thing with a free key chain or magnet with every "Dandy Variety Pack", though, and it'll continue for the rest of the year.

When I first started this it had been mid-February.  Besides birthdays, Valentine's Day, having a nasty cold, dealing with Winter's practical jokes, I was just too damned busy to write this entry in just one sitting.

Well, now looking forward: I'm going to write a speech for a rally; I'm going to paint Spring themed pictures; and, I'm going to send in a proposal to the art gallery in Baltimore.

Life continues: on and on and on.....

Thursday, January 19, 2012

Which is it?



Nothing stays the same.  The more things change, the more they stay the same.  Which is it?  Both, I suppose.  Love; hate; greed\; empathy; lust; sex; birth; death; inventions to improve life, inventions to destroy it; famine; war; fighting over land, religion, differing points of opinion - and everyone scrambling for the simple, never-ending pursuit of happiness.  Different players and environment but, basically, it's the same script.

One other thing that has remained constant throughout time, and yet keeps evolving as well, is a person's yearning for self-expression.  Whether in personal appearance or in deed, people strive to show the world who they really are, and how they view the world in which they live.  Sometimes the mode of self-expression is met with smiles, warmth, and congratulations.  Other times it is met with frowns, ridicule, and downright nastiness!

On Boxing Day, I went and got a tattoo.  It's a drawing of a raven, its body forms the word: "Nevermore". Underneath reads: "Sept 17 18 19  RW/FZ".   (Actually, I have to get it slightly altered because right now it says: "RWIFZ", which is rather ridiculous, as you will see as you read on.)

Why did I suddenly get a tattoo?  What is the meaning behind it?  I'll tell you!

On the Thursday before Christmas, I accidentally clicked on an icon on my Ipad, and what popped up? The photo of me meeting Gail Zappa during my Baltimore trip.  She had been speaking at a fundraiser to save Poe House, and had said that after Frank's death she'd felt as if seven ravens were looking over her, protecting her.  Edgar Allen Poe wrote the famous poem "The Raven", where the word "nevermore" appears repeatedly. The poem speaks of a lost love, his Lenore.

It all seemed so right, so inevitable, that I should get a tattoo of a raven, with RW (Rob's initials) and FZ (Frank's initials), as well as Sept 17, 18, 19.  Those dates, you see, have a double meaning.  In '09, Rob spent his last 3 days in the hospital on September 17th, 18th, and 19th.  Last year, I was in Baltimore, on September 17th, 18th, 19th, for the FZ Festival.  And after searching for two minutes on the internet for images of ravens, I found the Nevermore Raven. Perfect, I thought, it ties everything: Rob, Frank, Poe, Gail, Baltimore, and the tragedy of lost love.  Death=Nevermore....

My friends Dobrila and Yuula came with me when I got my tattoo.  They took turns holding my arm steady while the tattoo artist did the work.  It hurt like a bastard, as I knew it would, but it was also exhilarating to know I could stand so much pain for two hours straight.  I felt so empowered, like I could face any kind of pain head on.  It was cathartic too; the pain of grief still wears heavily, like an albatross, but now I feel I can deal with it better.

For the most part, people have given me positive responses to my tattoo.  Even my 86 year old mother was cool with it.  "Oh, Annie," she said with a smile, "I never know what you're going to do next!"

Other people, however, have made it their personal business to tell me that they think it was unwise for me to have gotten a tattoo.  They bring up the risk of infection, fading, and the general "tackiness" of how tattoos appear.  Rage boils inside me when I hear these things!  It's none of their business!  And, when people say it's ridiculous for me to have a tattoo at my age - watch out!  I detest ageism almost as much as ableism!

All of this prejudice against my tattoo has made me start to wonder: Is my body actually my own to do with it whatever I like or does it belong to society as a whole?  Which is it? Certainly my initial gut reaction is to say Of course this is 100% my body and to hell with anybody who says differently! However, in reality, what I can actually do with my body is limited by the medical system, the laws that govern us, and societal pressure.  Taking drugs, doing sex work, "unnecessary risk taking" (going over Niagara Falls in a barrel, for example), acting "weird" or just seeming to be "out of the norm" can land you in prison or in an institution.

And then there's the media. I can't even count how many shows and movies make fun of people who are over-weight, under-weight, intellectually challenged, are from different ethnic backgrounds, are "too sexually active", have different sexual orientation/preferences, wear off-beat or "un-cool" clothes or have piercings. The negative impact from this judgmental, holier-than-thou attitude is horrific because it 1) shapes people's expectations of how everyone's supposed to look and behave, and 2) it gives society the false idea that it's ok to be mean and judgmental of people who are different from us. 

Well, in closing, I'd like to say, Vive le Difference! Don't listen to those judgmental shmucks, be yourself and feel free to express your individuality!

Oh yes, and I dyed my hair red, and I'm going to fix my tattoo so that it doesn't look like I'm saying Rob Warenda is Frank Zappa. Although I have never seen the two of them together...

Wednesday, December 7, 2011

Mind the Gap!

As is my wont, my mind has been a great whirlwind of thoughts, ideas, and emotions.  Let me give you an example of how the thought process of my mind works:

I'm almost finished another painting. Thank god!  Only three more left to do.... Three more paintings before Christmas?! Yikes! Am I NUTS taking on so much work? No, no, I love it - it makes me feel alive!  I also need to order more cards and calendars and jigsaw puzzles and giclees.  Then I have to take pictures of everything and put them all up on my website and the Etsy website, and advertise on Facebook and Twitter......

It's Christmas in two weeks.  How can that be?  I love Christmas.  I hate Christmas.  I love Christmas.  I hate Christmas. I love Christmas. Parties, getting together with close friends. Eating, drinking, laughing. I hate Christmas.  I love Christmas.  I hate Christmas.  Memories of being in debt, fear of sliding down that steep slope again. Living in poverty has made me cynical.  "Simpler Times" - were they ever real or just an illusion? I love Christmas.  I hate Christmas.   I love Christmas.  I hate Christmas.  Childhood memories make me smile and feel nostalgic.  Memories of Rob at Christmas make me smile and feel nostalgic.  They also make me weep and want to rip my heart out to escape the pain of missing him.

Yesterday, after dinner, I was thinking about everything I've said here and more.  And as I ran my tongue over the sensitive gap in my mouth where, until last Thursday, my decaying tooth had been, I thought to myself, This is it!  This will be what I'm going to write about in my next blog entry.  Not about my missing tooth exactly, although that was an experience in itself!  (Forty-five minutes of the dentist yanking and yanking at it, only to have him end up drilling into the bone and cutting my gum.  Like the rest of me, that tooth was one tough and resolute little bugger!)  I want to talk about change (sometimes difficult, sometimes not), and the slow, resigned way it is often accepted in our daily lives.

Apart from taking pain killers and penicillin, and reminding my employees to "mind the gap" when they help me brush my teeth, I've gotten used to the new way my mouth feels.

Loblaws has taken over Maple Leaf Gardens.  They had their grand opening on December 1st.  I've been there twice now, and both times I started crying because I knew Rob would have been so psyched to go inside and explore.  (The change over from abandoned sports arena to glorified grocery store has been in
the making for at least 8 years!  Both Rob and I would groan and exclaim, "When will it ever be finished?!") 

And finished it finally is; all bright, shiny,  and new.  And yet, for all the changes inside, I can still see and hear the crowds rushing past Rob and me in order to buy tickets and WWF (later WWE) merchandise, or to get to their seats.  Maple Leaf Gardens wasn't like SkyDome (the Rogers Centre now):  a person in a wheelchair could sit close to ringside and not be labeled a "fire hazard".  Sometimes Rob's cousin Shauna or nephew Corey would come with us, and we'd try to meet the WWF wrestlers before they went in to wrestle.  We met Hillbilly Jim, and I was amazed at how enormous he was.  I had drawn a picture of Hulk Hogan and Rob tried his damnedest to have me me meet that famous wrestler and give him the picture, but security was too tight and it  was just impossible to do.  It was the early days of our relationship, and Rob said, "I'd do anything for you, Sweety! You're the love of my life."

That's what Maple Leaf Gardens means to me. And now it's a fucking grocery store!

Such is life, though.  Nothing stays the same forever.  I'll get used to my tooth being gone and I'll soon stop crying when I shop at Maple Leaf Gardens.  I'll never get used to missing Rob, though.

We, as human beings, adapt to change and, for the most part, that's good.  However, there are things that we shouldn't just shrug our shoulders and accept.  Oil spills, global warming, nuclear power plant disasters to name only a few.

My friend Amy told me about an article she recently read about China and its Emperors.  Every time the country got a new ruler, its people were forced to abandon the old currency from the previous Dynasty and accept the new one.  As you can imagine, this system was troublesome, to say the least, especially if Emperors died or were killed off during a short space of time.  Its people rebelled in a creative way.  They refused to use the country's currency; instead, they traded with silver. The rulers knew they couldn't stop the people from doing this, so they made silver the official currency.

In this time of rebellion and upheaval, this aforementioned story gives pause for consideration.  People frustrated with the economy and finding a peaceful, creative way to make things happen.

Solidarity with all Occupiers and activists who seek to make positive changes to the world.

Saturday, September 24, 2011

My Time in Baltimore



As my dear friend Aaron would say, " I did it!" Yes, I went to Baltimore, Maryland, just as I had planned on, dreamed of, and dreaded doing for the past 6 months. It was probably the hardest and yet most beautiful experiences of my life.

Five of my closest friends came with me on this momentous journey. They were wonderfully supportive, knowing that I wanted a balance of honouring Rob and his idol Frank Zappa, and seeing some of the art galleries and museums in Baltimore.





We got up on the 17th and ran out to the Frank Zappa Day Festival.  Actually finding the library where the bust of Frank was was rather difficult.  Who knew there would be two Enoch Pratt Free Libraries in town?

I had been ok up until I saw that beautiful bust, and then I let loose and bawled. I wanted Rob to be there with me so badly and it didn't seem fair that he couldn't be.  Rob would have been so thrilled to be there.  He would have played Mr. Nonchalant, but I, who knew him better than anyone, would have seen the sparkle in his eyes and that spring in his step.  As I sprinkled a very, very light dusting of Rob's ashes around the base of the monument, I consoled myself with the idea that maybe Rob's spirit was there.  Hell, maybe Frank's spirit was there too.



We started looking around the grounds of the festival and found many wonderful and unique crafts. Some, to be sure, had a FZ theme, but a lot did not. I bought myself a large magnet that said: "Legalize Marijuana in Baltimore." My friends bought me a beautiful necklace and earring set. Somebody found a program of what was happening that day, and one of the things that piqued my interest was the fact that inside the library there was a poetry reading to raise money for the Poe House, a community space dedicated to local poets in the memory of Edgar Allen Poe, himself another wacky Baltimore native. Both Gail and Ahmet Zappa were to be reading at it. I love poetry and Poe is one of my favourite writers, but the icing on the cake was the chance to meet Gail and Ahmet!

My friends and I were escorted inside and I was told to go sit beside Ahmet, in the front row. Aaaaahhhhh, can you believe it?!  I was so close I could have reached out and touched him, but I exercised restraint.  Gail was sitting on his other side. Because of this situation, and because of the emotional turmoil I had just been in sprinkling some of Rob's ashes, I asked for a lorazepam.

The poetry was wonderful. Especially the first guy, who dressed and spoke theatrically and recited Poe's "The Raven."  The poem that Gail read was one of my favourites too.  "Evelyn the Modified Dog" was written and sung by Frank Zappa. Gail read it as a poem and it worked really well that way. She made the point that song lyrics really are poetry.

After the reading I saw Ahmet running off. That was disappointing because I had planned to buy his book and get him to sign it. I approached the table to buy a book anyway and ran into the aide to the mayor of Baltimore. At first she was trying to rush Gail off to the next event and then she realized who I was. "Oh Anne! You must be Anne! ... Gail, this is Anne, the woman I was telling you about!" And then the moment arrived ... I got to meet Gail Zappa. And what a meeting it was!

She was so gracious and kind and down-to-earth. And she got me. It's rare for strangers to immediately get me like that. When I started crying and told her that I wished Rob could have been there because he loved Frank so much, and that I missed Rob so much, she started crying too and told me how much she missed Frank. It was a really incredible moment to share. As it that weren't enough, she gave me five of Frank's CDs, including one that has yet to be released. What a wonderful person!

My friend Michelle pulled down a copy of the festival poster for me, and Gail kindly signed it for me.  I also gave Gail a postcard and notebook I had made with the painting of Frank I had done on them. She seemed thrilled with them!



After that, my friends and I went to see a documentary on the making of  "200 Motels"  -  a film Frank made in the 70's.  I had heard that Ahmet would be there, and I thought I could get him to sign my book, but he wasn't there.  Instead, Gail was! And after the film she did a Q&A where she proved to be just as thoughtful and grounded as she'd seemed when we first met, and sassy too!

The film had been shown at a gallery space called The Creative Alliance. On my way out of the film I ran into the Artistic Director of the gallery. She explained the exhibit on the main floor and asked if we wanted to see the upstairs exhibit. I told her that we didn't have time because we were going to dinner and that I was an artist myself. I gave her one of the Frank Zappa postcards I'd made. Then she encouraged me to become a member of the gallery and to submit a proposal for an exhibition of my work in the upstairs space!! She said that normally that space focuses on local artists, but that it was definitely worth applying. I came up with the brilliant idea of proposing an exhibit that centres around this trip to the Frank Zappa festival, showing the paintings I did and all the video I made in lead up and during. Maybe it could be on during next year's festival and I could get a free trip down!



On the 18th of September we went along the city's beautiful waterfront looking for good and cheap food to eat.  And then, we strolled over to the American Visionary Artists Museum, an art gallery dedicated to quirky and undercelebrated works by self taught artists. We almost didn't make it inside because the outside of the main building (there are three) was so beautiful - completely covered in glass and mirror mosaic and surrounded by glass and mirror mosaic-ed sculptures!





There were even more cool things inside, like a life-size sculpture of a naked caveman made entirely out of wire. There was also a spectacular rotating bejeweled sculpture of Icarus suspended in the centre of a spiral stairwell, flying into the sun, wearing nothing but his wings and a ruby red bejeweled thong! Downstairs we saw (and some of us sat on) a bench covered in whoopie cushions, followed by a series of small artworks all dedicated to flatulence.  I was surprised by one thing I saw at this particular exhibit:  A photo of Queen Victoria with her favourite "fart jar".  Apparently, she liked to put her farts in jars and keep them.  Because of this somewhat weird fact, jars became better and better designed.



That night, back in our hotel room, we ate take-out, listened to music and to some of Rob's podcasts. Not everyone stayed up until 3:30am like I did.  I stayed up for a very special reason. Exactly two years earlier, at 3:30am on September 19, 2009, Rob died and I couldn't be there with him. If spirits exist and the time of their death matters to them then maybe Rob knows I wanted to be there for him and that this year, in a way, I was. We toasted him and I hope he could feel all our love for him. I mean he sure would be silly not to know how we feel about him since we orchestrated this entire trip around a celebration of his life ... but, he was a pretty humble guy.


Monday, September 12, 2011

The Countdown is on

"Zappa"   

Yes, the countdown is definitely on now! Five more days, and then I'm on the road to Baltimore to the Frank Zappa Festival, where I can honour both Frank and Rob.

The hotel and van are booked, and the travel insurance purchased.  Laura is looking after the cats while I'm away, and I've written out a list of all the things I need to be packed.  I like to be organized!  If I don't feel like I'm organized I become panicky. I even jolt awake in a cold sweat some nights, worrying about everything!

I got a phone call from the Mayor's office in Baltimore a few weeks back.  That was cool!  They had read the email I sent to Mayor Stephanie Rawlings-Blake asking for advice on cheap/accessible hotels and other fun/accessible attractions to see besides the FZ Festival.  The Mayor's aid said she could get me into a fancy hotel for a reasonable price.  At first I was thrilled, but then I compared prices and the Best Western Hotel, which I had booked 3 weeks beforehand, had better rates than the one the Mayor's aid was suggesting.  So, I wrote back and said, thanks but Best Western is good enough for me.

Five more days..... Am I happy? Am I excited about it all?  Yeah... sort of.   I'm sure I'll have some fun. And, of course, I'm taking cool, great, fantastic, brilliant people with me!  People I love.

And yet, I can not seem to get over this overwhelming sadness within myself.  Rob should be here to share in the whole experience - from start to finish - the planning, the arrangements, the trip itself, and the actual FZ Festival.   I can see him now, trying to be nonchalant and yet secretly overjoyed. That was Rob's style/ He would also try to look on the pessimistic side of things in order to brace himself for disappointment. That was Rob's style too.

I miss Rob so much!  There is not a day that goes by that I don't think about him and wish that he was still here. 

Nine more days until the second anniversary of his death.  Two years - how can it be?


"Love of my Life"

Thursday, July 21, 2011

Bound for Baltimore

"Love of My Life"

Last year, on September 19th, 2010, I found out that this date was the very first Frank Zappa Day in Baltimore.  Sadly, this date also commemorated the first year anniversary of my husband Rob's death.  Because Rob had always idolized Frank Zappa and his creative genius, it seemed like a huge sign that I should make a journey this year, in honour of Rob and in honour of Frank, and go to the second annual Frank Zappa Day.

I want more than anything in the world for this to happen! A couple of years before Rob's death, he would tell me every time when Zappa Plays Zappa came into Ontario how much he wanted to go see them play, and I would tell him that it all depended on our finances. Being on the pittance that ODSP gave us and drowning in debt, it, unfortunately, just never happened.  For Rob to see Dweezil Zappa and some of Frank's old band mates perform his favourite songs live - that would have made him deliriously happy!

The music of Frank Zappa was always in our lives, right from the beginning.  When Rob and I first started dating, he gave me a cassette tape of Frank Zappa and the Mothers of Invention, and asked me to choose my favourite  songs from it.  I chose "'The Closer You Are", "You Are What You Is",  "Bobby Brown" and "Sharleena." Rob and I decided "Love of my Life" should be our song, for obvious reasons. When I was pregnant, we were going to name our daughter Sharleena. Rob wanted to name our son "Greggery Peccary," but I drew the line!

So, on September 17th, a group of friends and I are driving down to Baltimore and staying until September 19th. It's going to be cool, great, fantastic, brilliant!!! We're going to have a ball! I want to play Zappa music all the way there and back, and I'm going to film the whole experience so I never forget it! Actually, I've been making a few short films to get ready. Here's where you can see what I've done so far:

http://annethevideo.tumblr.com/

I know I've said it's going to be fun and brilliant, sure, but it's also going to be damned hard. It'll be the two year anniversary of Rob's death - how can that be? Well two years or twenty, Sweety, you'll always be the love of my life.

Monday, April 11, 2011

Speeches, speeches, speeches!




What have I been doing lately?  Writing speeches, speeches, and more speeches!  I wrote three in March and one in April, all on vastly different subjects.

The first one was for the AFAC (Art for All Canada) conference at Metro Hall.

Here is that speech:


Whenever people ask me how long I’ve been painting, I always smile and reply, “Ever since I could breathe.” My name is Anne Abbott, and I create my artwork by painting with my right index finger. To my knowledge, I am the only artist who strictly uses this method and no other. Because I have Cerebral Palsy, a condition that affects a person's motor skills, this is the only way I am able to paint.
I've always had a profound love for art, ever since I was a small child. As a toddler, my mother would sit me in my highchair and give me a pad of paper and a paint set, and just let me go to it! She thought it would be a good diversion for me while she was doing the housework, but it would become one of the greatest passions of my life.

My family and friends encouraged me to keep going, to develop my art. My parents especially gave me guidance, praising me, of course, and giving me ideas of what things to paint. They also gave me constructive criticism and helpful hints on how to improve my craft. It also inspired me to know that both my grandmother and great-uncle had been artists. I felt as if I was following in their footsteps.

In public school, there was a weekly art class, and that piqued my interest even further. Eagerly, I absorbed all of the different types of techniques taught to me. I was even introduced to clay, kilns, paper mache, and making collages, but although these things were fun and inspired creativity, they just didn't hold my interest as much as painting did. I suppose one reason for this would be the fact that, except for having assistance in setting up the canvases and paints, I am able to do all the work on my own, and thus, lose myself within the process of making art.

There was about an 8 year gap in receiving any kind of instruction in art. This was both liberating and restrictive. Yes, I enjoyed experimenting with colours, shading, and different styles, and I was confident in the progress of my work. And yet, I felt that I could benefit from some guidance so that I could improve my craft even more.

When I was 18, I heard about Arts Carousel, a non-profit organization whose focus was on giving people with disabilities a chance to realize their creative potential. One of the instructors offered to come to my home and give me 10 free art lessons. His name was Michael Seary, and he was good to his word about giving me the free lessons. In fact, he ended up tutoring me for ten years!

Having an instructor who was an artist himself and being able to give me so much of his time, was a real bonus! I learned a lot more about art than I ever had before. I began experimenting with oils, water colour, acrylics, different grades of paper, and found out, by trial and error, which worked best for me.

Besides teaching me techniques about how to improve my craft, my art instructor arranged for me to show my paintings, first, in a group art show at the CN Tower, and then at several other venues. He also very kindly found someone at U of T who designed a special easel which made painting a great deal easier for me, because it allowed me to be able to turn the picture around and thereby reach all of the areas of the canvas. 
 
Over the years, I have absorbed teachings and knowledge from many different people and many different books. However, a lot of my learning came from within myself. Because of my wild, uneven movements, painting always presented a particular challenge for me. Throughout the years, figuring out the puzzle of how to do my art became like an obsession with me. I knew I couldn’t exactly paint like other artists, and yet, I also realized that if I persisted in developing my own technique I could produce truly original and unique bodies of work. 
 
Up until this point, I had used a brush to do my art. However, by the time I was eighteen, because I began experiencing severe pain in my hand and arm from gripping the paintbrush so tightly, I decided to throw down my paintbrush one day and simply use my index finger to paint instead. From then on, because I was far more comfortable than I had ever been, my art started to gradually evolve. I learned that it had a certain power to it and that I could use it as a voice, to reveal the passions and frustrations I felt deep within me. 
 
There are times when I paint just for the joy of it, there are times when I paint because I have to pay the bills, and then there are those times when I paint because I need to put a message out to the world. 

As many of you may understand, Vincent Van Gogh and Frida Kahlo were particularly influential and inspirational to me. Both of these famous and brilliant artists provided a window into which it was possible to glimpse snippets of their personal lives. Look deeper still, you can see the workings of their minds, their feelings, their very psyches. If you look at Van Gogh's “The Bedroom at Arles” and “Self Portrait with Bandaged Ear”, his loneliness and mental health troubles become apparent at once. “Henry Ford Hospital” and “Self Portrait with Cropped Hair” are two of Frida Kahlo's masterpieces, and they're both full of raw emotion: loss, anger, and resignation.

I feel that it is very brave for artists to expose such intimate details of their lives within their art. This is something I greatly admire and strive to emulate with my own work.

Recently, I myself, have put my own personal experiences into my art. Eighteen months ago, my husband Rob passed away suddenly, and to deal with my grief, I painted what I felt. Some artist friends of mine told me that they were unable to produce any work after a traumatic event happened to them. I, on the other hand, felt an overwhelming need to paint my terrible pain and sorrow. Some people say, “Oh, this must be very therapeutic for you!” and, certainly, it is. 
 
However, it also goes back to the very core of my philosophy regarding my life and my art: It is important for me to expose my feeling, experiences, and ideals to the public. Certainly, other artists must feel this way, but, for me, because of my disability, I feel this far more passionately. I need people to see the person I am, the type of life I lead, and the hardships I go through on a daily basis. People like me, our lives are not represented as equally as other members of society.

In most of my self portraits, I am completely naked. To some, this might seem shocking, but it is my intent to: 1) reveal the reality of my life: (It is the norm rather than the exception to have people see me naked on a daily basis). 2) demonstrate to women in our society (either able-bodied or with disabilities) that they should not feel shame or regret when they think about their bodies, but should instead rejoice in their differences. And, 3) to make people understand that just because people have disabilities doesn’t mean that we don’t have the same feelings of sexuality as anyone else.

Having faced terrible prejudice and injustice throughout my life, I have grown sensitive to the plight of other marginalized people. Through my art, I attempt to reveal the continuous battle that people face against societal boundaries just to be able to be themselves and to be able to live the way they want.

Thank you.

It would be my great pleasure now to demonstrate to you how I paint.

And that's what I did.  I painted a picture in a white dress, and it, too, became like a canvas, a beautiful painting.

The next speech was for Trampoline Hall.  The subject was on Victorian poet Elizabeth Barret Browning.


My name is Anne Abbott, and I'm here to talk about Victorian poet Elizabeth Barret Browning.

It truly amazed me, as I mentally prepared to write about this famous poet, that no one I mentioned her name to knew who she was. I was met with a lot of quizzical looks accompanied by: “Who?” You know,” I'd say, “the woman who wrote 'How do I love thee, Let me count the ways...'” “Oh her,” they'd say, “Yeah, Elizabeth Barret Brown!” “I-N-G,” I corrected. “ Elizabeth Barret Brown-ing.”

Admittedly, I was kind of a bit smug about my knowledge of who Elizabeth Barret Browning was. I mean, I wasn't an expert or anything, but I had some basic facts on her and her life. She was a famous poet with a physical disability and an overbearing, over-protective father. As a young woman, she met another poet of notable fame. His name was Robert Browning. Even though they both knew that Elizabeth's father strongly disapproved of their relationship, they couldn't help but fall madly in love. Because her father did object so completely and utterly to their devotion, Elizabeth and Robert eloped one day, and, basically, lived “happily ever after”. Elizabeth was so happy and in love during the first few years of marriage that she wrote a book about her love for her new husband, entitled “Sonnets of the Portuguese”, in which “How Do I Love Thee” appears.

These were the things that were told to me by my teachers and family. Seeing the play “The Barrets of Wimpole St.” confirmed what I'd already learned. The play was about Elizabeth and her eleven brothers and sisters and their over-protective father who didn't want any of them to get married, especially not Elizabeth.

This play affected me a great deal. Here I was, a teenager with a disability, and it was becoming more and more apparent that our society frowns on people with disabilities and able-bodied people having romantic/intimate relationships with each other. Even my own mother suggested that I narrow my scope because, in her opinion, able-bodied men wouldn't want to “take care” of a woman with a disability! This seemed extremely unfair to me! Except for a few physical limitations, there were many things I could offer a potential mate. There's nothing wrong with people with disabilities dating other people with disabilities, but that choice should be left up to us, not to the pressures of society. And so, whenever I felt depressed over the unfairness of it all, in my mind I would hold up the story of Elizabeth and Robert as a symbol of hope..

Really good friends of mine who were able-bodied would set my other disabled friends up on dates who didn't have as involved disabilities as me and that really hurt. I didn't say anything because I knew this was just the way people thought.

In my twenties, I began to feel frustrated. I was a virgin. And I didn't want to be a virgin forever. Nobody seemed to understand what I was feeling, which made it even more frustrating. I mean, sex isn't just two bodies going at it, its two people connecting on many levels, and I wanted to be part of that.

My sister-in-law took me to see male strippers and that was fun but none of them wanted to have sex with me. At 29, 1987, I got on the computer and started chatting with people. I had a lot of guys come onto me and that was good! I didn't tell anyone I had a disability for fear of being rejected. But this one guy named Rob was very persistent and kept wanting to meet me so I had to tell him I had Cerebral Palsy. To my delight and surprise, it didn't matter to him because he had gotten to know the person I was. We met and fell in love and eventually got married. We were together for 22 wonderful years. We tried to have a baby and a lot of people, including my parents, were against the idea. Unfortunately I had a miscarriage.

Well, anyway, back to Elizabeth and the romance between her and Robert. From the dim recesses of my mind, I remember hearing that someone had discovered that Elizabeth's condition had been Spina Bifida, a congenital malformation in the vertebral column. I've known many people with this condition and have seen how it can affect different people in different ways, and it sounded quite plausible that Elizabeth might have had it as well, perhaps as a milder form.

I then came across this quote, and others with a similar theme that brought new information to light for me: “Although frail, she apparently had no health problems until 1821, when Dr. Coker prescribed opium for a nervous disorder.” This “nervous disorder” wasn't yet recognized by the medical science of the time, so we don't know its name. But it's quite apparent that she was in a great deal of pain. That's why she was prescribed a lot of morphine. Many years after being with Robert, bearing a son, (after having several miscarriages) and writing volumes of published poetry, one of her peers accused her of losing her edge because of her addiction, to which Elizabeth replied scathingly, “Viva opium! And may you and I live by its means!”

At the end of her life, Elizabeth was diagnosed with having an abscess on one of her lungs and her doctor increased her dose of morphine. On June 29th, 1861, Elizabeth died in Robert's arms, probably from paralysis of the breathing caused by the excessive morphine.

So, I guess I got a few things wrong about Elizabeth Barret Browning. Oh well... But I did learn some pretty interesting and cool things about her as well.

For one thing, she opposed slavery and published two poems that highlighted the barbarity of the slave trade and her support for the abolitionist cause. This is very significant because both sides of her family made their fortunes in the slave trade. Elizabeth also sought to improve other areas of social injustice: the oppression of the Italians by the Austrians, the labor of children in the mines and the mills of England, and the restrictions placed upon women


Elizabeth's book, simply named “Poems” made her one of the most popular writers in the at the time and, indeed, inspired Robert Browning to write to her, telling her how much he loved her poems. Interestingly enough, Elizabeth had produced a large amount of work and had been writing long before her future husband, Robert Browning, had set pen to paper.

I'm still not 100% sure what condition Elizabeth had, and really, does it matter? She was more than just a frail, ill woman who was rescued from her tyrannical father by this, famous poet who (literally!) swept her off her feet. She was a human being, like the rest of us, with strengths and weaknesses, highs and lows.

Honestly, I think I like and respect this Elizabeth Barret Browning more than the one dimensional character that people conjured up for me when I was a teenager. I can understand and empathize with Elizabeth. Our lives seem weirdly parallel. We both have conditions that limit our mobility and give us pain, our parents were over protective and couldn't see marriages in our futures, and even more weirdly, men named Robert fell madly in love with us. Sadly too, we both had miscarriages. Even though we both faced hardships, we both strive to make positive change in the world.

Doctors gave Elizabeth opiates when she was young and doctors gave me Valium when I was young. We both became addicted to our drugs but I was lucky enough to realize it and wean myself off. I always try hard to never ride that merry-go-round again but its hard when I get in so much pain. Pot, Percocet, Codeine: I do them all, but I try my best to juggle them and not get too dependent. Yes, I do this for my health, but just as in Elizabeth's time, there's this taboo of being addicted to drugs. You're viewed as bad and weak if you succumb to the evils of drugs.

I had a friend named Aaron who went into rehab for alcohol addiction and it was really warped how some of the other patients treated him. They implied that his situation was worse than theirs because he had a disability. Its wrong and humiliating to tell someone their life is worse than anybody else's. They also implied that it was good that he had assistants to help with his daily life because, they said, Aaron could simply tell his people to stop giving him drinks. This suggestion is shocking to me because this action would ultimately take away Aaron's freedom of choice! And, I can't see that anybody else within that group would be willing to have such restrictions put upon them!

It is my belief our society would be a whole lot better if people were less judgmental and open to idea that everybody has something to contribute to the world, even love.

Thank you.






Ottawa was where I gave my next speech  Lenny, Aleisha, and I rode on Via Rail, First Class, and enjoyed all of the perks: free food and as much booze as you want.  If this sounds like gluttony as its worst, then let me just say that I feel justified in taking full advantage of Via's generosity, because they have only one wheelchair seating area on the whole train, and the bathroom is not accessible.

The actual conference I  was speaking at was on police brutality. It was, to say the very least, eye-opening and disturbing. On the first day, there was a panel of four people who all talked about how cops had killed members of their families, and had got away with it by covering it up.

Here's my speech:


On July 21, 2010, my friend and employee Lenny used a megaphone to read the speech I had written out of the office window of the Liberal Party Headquarters. Our peers down below, from both OCAP and DAMN 2025, cheered as we denounced the McGuinty government for cutting the Special Diet and the hypocrisy of the government's recent ridiculous spending spree. Nine other people were with us in that tiny office space, and one person hung a banner out the window. Nothing else was either touched or moved.

The action should have only taken 15 minutes, maybe 20 at the most, and then we were supposed to just leave. Unfortunately, as Lenny neared the end of my speech, a bunch of cops burst into the room and dragged Lenny into the hall. Soon, all 11 people, including myself, were unceremoniously corralled into the outer room.

Most people were cuffed and reprimanded by police, although they didn't inform people until much later with what they were being charged. They did try to tell us that people from the Liberal Headquarters had told us to leave, but I sure never heard them. In fact, they had been very helpful to get us inside.

I was told to go sit by a wall. Two people from my group were in front of me, and everyone else was behind me. As if I were invisible or inconsequential, the cops ignored me, and questioned and yelled at everyone else in the room. Eventually, one cop came over asked me if he could look in the bag on the back of my chair for identification, and I shook my head and pointed to my money pouch around my waist. Fortunately, he understood, but I was anxious to get Lenny back with me so that I could communicate more freely and precisely. My two friends in front of me helped me convey this to the cop. I could hear Lenny behind me telling some other cops that it was against Human Rights to keep my communication assistant away from me. I also told them that I needed Lenny with me for other kinds of assistance that day, because I had no one else scheduled to come to my apartment that evening. At that point, the cop actually said to me, "No problem, we'll call an ambulance for you and send you to the hospital." I almost exploded in fury and indignation! I rapidly spelled out on my communication board: "No no no no no! I'm fine! I'm not sick!" I wished I could have conveyed to him exactly how triggering the mere mention of a trip to the hospital was for me! Hospitals are not safe places for people with disabilities. Like prison, you're treated as if you have no rights and no brains with which to think.

Forty-five minutes had passed by this time. I could hear one cop yelling at Lenny and saying it was disgusting how I had been coerced into participating in the action. Lenny defended himself by saying that he had only been doing what I asked him to do, but the cop wouldn't listen. Finally, Lenny was by my side, and I spoke up and said that I had written that speech and asked Lenny to read it. I added proudly, "I am not a pawn!" Why was it so beyond belief for the cops that I might have self-determination and want to stand up for my rights, especially since I would, in all probability, be losing a huge chunk of my monthly income?

It was then that I was charged with trespassing, as was Lenny. We were the only two who didn't also get charged with mischief and have to do a night in jail. I guess because it was too much work for them to find us an accessible paddy wagon and cell. Oddly, sometimes our ableist society sometimes to work in our favour.

As I say, my speech was about the right to keep the much needed Special Diet money that was about to be cut from ODSP and OW recipients. During the G20, I marched with my peers in solidarity for this right and many more, so that we can live life with dignity and freedom.

The cops took no notice of the honour of our stance. No, instead they saw it as a chance to display their grotesque brute strength over the people they're supposed to “serve and protect”.

I realize that police violence is the norm, unfortunately; rather than the exception, especially when it comes to the poor, the marginalized, and the disabled. It's just that, during the G20, this fact became startlingly, unnervingly, obvious. With millions of dollars in government funding and support, cops felt like they could do anything with the power they'd been given. They've always had power over the public, and have, too often, abused that privilege, but, during this time this fact seemed to be magnified 100 times.

With my own eyes, I saw one cop pull a deaf man from the crowd for no apparent reason and detain him, keeping him from his ASL interpreter for hours. Everyone has heard the horrific stories of the G20, where police terrorized the public in their quest to find the “bad activists”, but also targeting the most vulnerable people. Tearing off a prosthetic leg from a prone man and then dragging him across concrete – disgusting! But the brutality continued even after the G20 had ended. In BC, a young woman with CP simply brushed by 2 cops as she walked down the street. They tackled her to the ground, thus breaking her wrist.

Cops are trained to harass and perpetrate violence against people who look or act different from the “norm”. Certainly, poor, marginalized people, and people with disabilities fit this description.

On a larger scale, our immigration system is an excellent example of this type of negative profiling. Poor and disabled people from other countries are seen as a drain on resources, with no kind of discernible worth at all. It is because of this shameful attitude that it is so easy for our government to refuse these people entry into the country, or send them back to horrific conditions, and sometimes even death. This practice must be stopped! No one is valueless, no one is illegal, and everyone deserves a shot at a better life!

To end, I will tell you that Lenny and I are still waiting for the trespassing case against us to finally go to court; it keeps getting pushed back. Now they say it will take place in the summer. I am sure this delaying tactic is designed to wear us down by postponing it over and over again, but it only makes me more resolute to fight and to show how rampant ableism is within the police and judicial system.

It's so utterly disgusting to me how cops view people with disabilities. We are either seen as being extremely guileless and helpless, or as being an easy target for harassment and persecution.. Unless we put a stop to this, the police will always target poor and disabled people. We must work together to stop police violence! We must work together to stop the further funneling of funds to the police force. There are a billion better ways to use that money!

Thank you.


My last speech was at the "Raise the Rates" demonstration on April 1st. We read some of our speeches outside of the Sheraton Hotel, where Dwight Duncan and his cronies were inside having a big expensive banquet to celebrate all the money they were saving by cutting poor people off the special diet.  We then marched up University to Bay Street and stood in front of the Department of Social Services, where we read more speeches.
Here's my speech from that day:


The provincial budget, which was delivered by Dwight Duncan on March 29, 2011, did absolutely nothing for poor people in Ontario who rely upon the already ridiculously meager amounts from ODSP and OW.
Food prices are skyrocketing, and energy and transportation costs keep rising. The budget’s 1% increase to OW and ODSP is both insulting and demeaning! We need more to live, thrive, and feed our families on than a mere one percent! What a slap in the face!
But there is another injustice I want to talk about today, and that is the cutting of the Special Diet money. Back in December, 2010, just before Christmas, the government magnanimously announced that it would “save” the Special Diet. Yeah, right! What they meant was they'd cut the much needed program and have everybody on ODSP and OW re-apply. The cunning bastards knew what they were doing! They knew that this would cause major difficulties for people, which would, inevitably, slow down the system while weeding out some of the applicants – applicants who still need and deserve that money in order to survive! The list of qualifications was also shortened, another measure to ensure that only a very few could receive the Special Diet again. Not only do they want us to wade through miles of red tape, the government wants to take our right to privacy away by saying that ODSP and OW can look into our medical records if they want.
Dwight Duncan and our government as a whole, do not respect the poor people of this country. They treat us as if we are scum that they scrape off from the bottom of their shoes. But we are people, just like anyone else in this country, and, as such, we deserve to have the same rights. The right to have enough money so that we don't have to be forced to choose between paying rent and eating. The right to have enough money to buy nutritious food so that we can remain healthy and thrive. Most important, we deserve the right to receive enough respect from our government to be assured that the money, which is vital to our very existence, will never be suddenly cut.
Thank you.

Have I finally finished all of my speaking engagements? For now yes, but in May I'll be giving a talk to medical students.  As Rob used to say, "For someone who's non-verbal, you sure do talk a lot!"